Other Family & Personal Stories
Hello, my name is Trajano Cerna. I am from Quito-Ecuador, and I live in the United States. I went to School of Medicine for 2 years in Ecuador. I enjoy walking and doing exercises in the park. And I like drinking natural juices. My story starts here – according...
Robert's Road to Recovery
Robert’s Road to Recovery This is the ongoing journal of Robert Stark’s fight against alpha-mannosidosis via Bone Marrow Transplant. Families and caregivers of children with mannosidosis and other Lysosomal Diseases face complex decisions about the future....
Robert's Road to Recovery
Robert’s Road to Recovery Prologue Robert, our youngest son, was diagnosed with Alpha Mannosidosis in February 2001 at the age of four. This was a long time in coming. I want to cover some history that may be useful to other parents. Robert is now recovering...
Robert's Road to Recovery
Robert’s Road to Recovery The First TransplantHeading Kathleen’s Personal Diary Robert’s mother, Kathleen, is maintaining diaries of her son’s BMT for Alpha Mannosidosis. This section covers the details behind Robert’s first transplant,...
Robert's Road to Recovery
Robert’s Road to Recovery Medical Notes BMT #1 Medical Notes & Observations In the interest of providing an historical record for other families, Robert’s mom, Kathleen, is keeping a log of medical milestones before, during and after her son’s...
