Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 7, 2002 BMT + 5 Robert is feeling better today after 24 hours of antibiotics. He still has an intermittent fever, but...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 9, 2002 BMT + 7 Right now it feels like a numbers game; watching Robert’s temperature, his blood pressure, his...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 10, 2002 BMT + 8 Life is good when you still have a mother who can hug you and tell you that everything will be...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 12, 2002 BMT + 10 Robert has been uncomfortable today. Because Robert has the mentality of a two and half year old and...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 13, 2002 BMT + 11 Mark had some cautiously optimistic data this morning when he received a copy of Robert’s...