Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 31, 2002 BMT + 58 Life is good! Today Robert’s platelets stayed the same as yesterday. This means he has to be making...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 1, 2002 BMT + 59 The change in Robert this last week has been miraculous. Who would have thought just a week or two ago...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 2, 2002 BMT + 60 Dan’s update yesterday is hard to top, so I won’t even try. Robert is doing great; he’s been thrilled...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 7, 2002 BMT + 66 Robert’s eyes are looking less yellow. He looks quite striking with his dark tan and his baseball hat...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 8, 2002 BMT + 67 I was pretty embarrassed yesterday; I requested a consult from dermatology to look at the black line...