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  • Glycoprotein Diseases
    • Alpha-Mannosidosis
    • Aspartylglucosaminuria
    • Beta-Mannosidosis
    • Fucosidosis
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    • Mucolipidosis II alpha/beta
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Robert’s Road to Recovery Journal June 15 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 15, 2002 BMT + 74 Robert is sleeping through his Saturday afternoon (he received Benydril before receiving his...

Robert’s Road to Recovery Journal June 16 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: BMT + 75 Today has been quiet; the exciting part of the day is giving Robert his medications. Since there isn’t much...

Robert’s Road to Recovery Journal June 17 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 17, 2002 BMT + 76 Everyone I met in the hallway today said I hear you are going home tomorrow. It sounded so good....

Robert’s Road to Recovery Journal June 18 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 18, 2002 BMT + 77: Homebound! Robert knew something was going on when I pulled the hospital kid’s wagon into the...

Robert’s Road to Recovery Journal June 20 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 20, 2002 BMT + 79: Homebound! I wish everyone could enjoy life as Robert does and we are so lucky to be able to enjoy...
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Family Stories

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Family Journals of Treatment & Recovery

  • Alexander's Hope
  • Damien and Jesse-Rose
  • Daniel and Alexander's Journey to Diagnosis
  • Ivan the Great
  • Jenny's Journal
  • Robert's Road to Recovery
  • Trajano Cerna's Story

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  • Mucolipidosis III alpha/beta 
  • Sialidosis

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