Alexander's Hope
I am William C. Skojec and I would like to introduce you to a very special person, my son Alexander. His name means “helper of mankind,” and I am hoping that this will be his legacy. You see, Alex was diagnosed with Sialidosis, Type II shortly before his...
Alexander's Hope
Dr. Skojec, and all of Alex’s family, has done much to advocate for his son, Alex, since learning of his diagnosis. Among these are public awareness efforts utilizing the local and national press. Among these accomplishments are the following stories, which will...
Alexander's Hope
Bridging the Gap for Sialidosis! Alexander’s Dad has been on a mission since his son’s diagnosis with Sialidosis. This mission includes not only enabling opportunities for scientific progress in understanding Sialidosis, but enriching his family’s...
Alexander's Hope
Bridging the Gap for Sialidosis Read Bill Skojec’s recount of the day’s...
Alexander's Hope
by Dr. Bill Skojec Alex, Angela, my mother, and I went to Ontario, Canada in June 2001 on a journey to renew hope, and meet the people who have become so important in our lives. It was an inspirational journey for me and it left me recharged to fight again. Seeing...
