Todd Bobeda

Jenny's Journal

Jenny’s Donor: Todd Bobeda Jenny and all of us want to thank Todd for his humanity in allowing Jenny a chance to overcome the progressive effects of Alpha Mannosidosis. To read his recount of the harvest of his marrow, see Jenny’s mom’s account in...

Jenny’s Photo Gallery

Jenny's Journal

The Smith family, in their desire to help humanize alpha mannosidosis (and out of understandable pride for their daughter), have consented to this pictorial homage to Jenny. We hope you enjoy it and our thanks to Jenny for her courage and her beauty! This photographic...