About Jenny: Dianne’s Story

  was born with a herniated umbilical cord and she was jaundiced. The doctor that delivered her told me that she seemed about 2 weeks premature. I have 5 younger brothers and had pretty much raised my youngest brother when I was 15 years of age; my mother wasn’t...

Jenny Introduction

New photos of Jenny! Chronicling the saga of a young adult woman’s fight to stem the advances of a very rare genetic disorder, alpha mannosidosis, via bone marrow transplant. If you wish to know more about transplants for any storage disease, please visit our...

Journal Entries

Jenny’s mom, Dianne, has kept family and friends apprised of Jenny’s progress with her Bone Marrow Transplant from the initial decision to move forward to the tense days and weeks following the procedure. These “updates” have here-to-now been...

Jenny’s Journal Background

Jenny Smith’s journey began, unbeknownst to her family at the time, many years ago when, according to her mother, Dianne, Jenny experienced a series of seemingly unrelated physical challenges.  Through a succession of specialists the real cause lay hidden, until...

Jenny’s BMT Album

Chronicled here is Jenny’s journey from BMT through recovery and her new future.  Our hope is that these portraits, in conjunction with her mom’s log, will help humanize the ordeal many face in undertaking such a courageous course. June 17, 1999 June 17,...