A family’s fight against sialidosis Sialidosis is one of the Oligosaccharide family of Lysosomal Storage Diseases. The International Society for Mannosidosis & Related Diseases is proud to present the story of Alexander Skojec and his family's fight, through the...
I am William C. Skojec and I would like to introduce you to a very special person, my son Alexander. His name means "helper of mankind," and I am hoping that this will be his legacy. You see, Alex was diagnosed with Sialidosis, Type II shortly before his first...
Dr. Skojec, and all of Alex's family, has done much to advocate for his son, Alex, since learning of his diagnosis. Among these are public awareness efforts utilizing the local and national press. Among these accomplishments are the following stories, which will...
Bridging the Gap for Sialidosis! Alexander's Dad has been on a mission since his son's diagnosis with Sialidosis. This mission includes not only enabling opportunities for scientific progress in understanding Sialidosis, but enriching his family's contacts with others...
Bridging the Gap for Sialidosis Read Bill Skojec's recount of the day's events.
by Dr. Bill Skojec Alex, Angela, my mother, and I went to Ontario, Canada in June 2001 on a journey to renew hope, and meet the people who have become so important in our lives. It was an inspirational journey for me and it left me recharged to fight again. Seeing...
By Rebecca Paley Poughkeepsie Journal In some ways, Alexander Skojec is like any other infant. He babbles and likes to play patty cake. But Alexander — who was diagnosed with a serious disorder that makes his future uncertain — is very different from most children. In...
From the Times Herald-Record: Wednesday, May 10, 2000 West Park: Bill Skojec's son has a genetic disorder that's so rare, few doctors have even heard of it - yet the father still has hope. By Jeremiah Horrigan The Times Herald-Record jhorrigan@th-record.com Bill...
From the Press & Sun Bulletin: Sunday, August 13, 2000 Father struggles against time to save son from disease BY MARY ESCH Associated Press HYDE PARK — Bill Skojec gates into the sparkling eyes of his wispy-haired son with the intensity of someone absorbed in a...