This is Jenny’s story of reclaiming her life after Bone Marrow Transplant ...reclaiming a life through BMT Jenny's Journal Introduction My mom's diary about my BMT My picture gallery Information about bone marrow transplants for storage disease Thank you for all your...
Bone Marrow Transplants are currently the only therapy available for the Oligosaccharide Diseases. It will not be a viable choice for everyone, as many factors must be considered: age, degree of CNS (Central Nervous System) involvement, sibling donor possibilities and...
Jenny's Donor: Todd Bobeda Jenny and all of us want to thank Todd for his humanity in allowing Jenny a chance to overcome the progressive effects of Alpha Mannosidosis. To read his recount of the harvest of his marrow, see Jenny's mom's account in her log entry # 23:...
The Smith family, in their desire to help humanize alpha mannosidosis (and out of understandable pride for their daughter), have consented to this pictorial homage to Jenny. We hope you enjoy it and our thanks to Jenny for her courage and her beauty! This photographic...
was born with a herniated umbilical cord and she was jaundiced. The doctor that delivered her told me that she seemed about 2 weeks premature. I have 5 younger brothers and had pretty much raised my youngest brother when I was 15 years of age; my mother wasn't well....
New photos of Jenny! Chronicling the saga of a young adult woman's fight to stem the advances of a very rare genetic disorder, alpha mannosidosis, via bone marrow transplant. If you wish to know more about transplants for any storage disease, please visit our BMT...
Jenny's mom, Dianne, has kept family and friends apprised of Jenny's progress with her Bone Marrow Transplant from the initial decision to move forward to the tense days and weeks following the procedure. These "updates" have here-to-now been shared with members of a...
Jenny Smith's journey began, unbeknownst to her family at the time, many years ago when, according to her mother, Dianne, Jenny experienced a series of seemingly unrelated physical challenges. Through a succession of specialists the real cause lay hidden, until the...
Chronicled here is Jenny's journey from BMT through recovery and her new future. Our hope is that these portraits, in conjunction with her mom's log, will help humanize the ordeal many face in undertaking such a courageous course. June 17, 1999 June 17, 1999 June 25,...