Great News for the Lysosomal Disease World! When Jenny saw Dr. Stella Davies today, she shared some wonderful news with us. In September Stella will be heading up the Bone Marrow Transplant Ward at Cincinnati Children's Hospital. She will be working closely with a...
Our Hearts are filled with HOPE! This past few months have been an amazing time for us. We are seeingJenny transform right in front of our eyes. Dr. Davies equates it to aflower that slowly blooms. Jenny has really NEVER BEEN BETTER! Jenny moves about the house...
Progress In Leaps and Bounds! I have just re-read my last update and I cannot believe how much has changed since then. This past 9 weeks have been so incredible. If I hadn't been present to witness Jenny's transformation, I'm not sure I would believe it - it is...
A Tentative Step From: "Smith, Dianne" Dianne.Smith@mpls.frb.orgSubject: [JennysHope] Update #31 A Tentative StepDate: Tue, 29 May 2001 21:01:14 -0500 As you know, Jenny has been bedridden since March 1 due to the auto-immune suppression. The plasmapheresis treatments...
An Answer --- it is treatable and reversible! From: "Smith, Dianne" Dianne.Smith@mpls.frb.org Subject: [JennysHope] Update #30 An Answer --- it is treatable and reversible!Date: Wed, 4 Apr 2001 21:09:56 -0500 Jenny has been through so much since the last update. Still...
An Unforgettable Day! From: "Smith, Dianne" Dianne.Smith@mpls.frb.org Date: Sun, 7 Jan 2001 19:54:02 -0600 Just like our wedding day, or the days that Jenny and Jason were born on; we will never forget today no matter how long we live. Jenny's donor, Todd, was flying...
More Progress with a Small Setback From: "Smith, Dianne" Dianne.Smith@mpls.frb.org Date: Thu, 19 Oct 2000 15:40:18 -0500 Jenny's neurological function is improving daily. We couldn't be happier. She can now do so many things for herself: getting dressed, moving from...
CMV Virus in both Retinas! From: "Smith, Dianne" Dianne.Smith@mpls.frb.org Date: Wed, 6 Sep 2000 18:09:46 -0500 Once again our dear Jenny is having to endure another setback. She began having difficulty seeing at the beginning of August. On August 4, I took her to a...
Transplant is back on the track! From: "Smith, Dianne" Dianne.Smith@mpls.frb.org Date: Wed, 26 Jul 2000 10:31:43 -0500 So much has happened since I sent out the last update on June 5. Here is the latest on Jenny's progress and news. Jenny had another MRI of her brain...