Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 4, 2002 BMT + 32 Robert has been fairly comfortable in PICU and he seems to be breathing easier on the ventilator (not that he is...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 6, 2002 BMT + 34 Robert is receiving a lot of sedatives to keep him quiet. When he wakes up, the ventilator tube upsets him and he...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 7, 2002 BMT + 35 Robert is still on the ventilator; but his lung function is improving, and he may be taken off the machine in the...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 9, 2002 BMT + 37 Robert is still on the ventilator; but he is being tested today to take him off the ventilator. He has continued to...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 10, 2002 BMT + 38 Robert is still on the ventilator. He passed the lung test to be extubated, but since he had unusually high...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 12, 2002 BMT + 40 Robert is still on the ventilator. He passed the lung test to be extubated, but since he had unusually high...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 14, 2002 BMT + 42 Kathleen and I were very happy to get some smiles and giggles from Robert yesterday. He also told us "no" a couple...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 16, 2002 BMT + 44 For the tetchy group, you are going to have to endure my update because Mark did not write one today. I have been...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 18, 2002 BMT + 46 My new motto is, “What a difference a day makes”. Robert had a very tough night last night. They finally were able...