Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal May 20 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 20, 2002 BMT + 48 For all of you who flatter me and say that our updates are the first thing you read on e-mail in the morning; that...

read more

Robert’s Road to Recovery Journal May 21 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 21, 2002 BMT + 49 Let's get through the bad news really fast; Robert's GGT went up from 987 to 1149, the highest it has ever been....

read more

Robert’s Road to Recovery Journal May 22 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 22, 2002 BMT + 50 Let's get through the bad news really fast; Robert's GGT went up from 1149 to 1319, the highest it has ever been....

read more

Robert’s Road to Recovery Journal May 23 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 23, 2002 BMT + 51 Let's get through the bad news really fast; Robert's GGT went up from 1319 to 1508, the highest it has ever been....

read more

Robert’s Road to Recovery Journal May 25 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 25, 2002 BMT + 53 I'm sorry that the update is late today. I wasn't able to connect to email last night. This is the first update...

read more

Robert’s Road to Recovery Journal May 26 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 26, 2002 BMT + 54 Robert continues in very good spirits and strong voice. (His neighbors and the nurses are getting used again to...

read more

Robert’s Road to Recovery Journal May 27 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 27, 2002 BMT + 55 I think Robert had a very nice day. He spent the day with Dad, Uncle Dan and then Mom. Dad bribed him into eating...

read more

Robert’s Road to Recovery Journal May 28 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 28, 2002 BMT + 56 Robert had a very busy day. Everyone in the hospital has had to come by and see how well he is doing. They all...

read more

Robert’s Road to Recovery Journal May 29 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 29, 2002 BMT + 57 I may have used the "H" word too soon. Today I got the impression that I might be the only person talking about...

read more