Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 30, 2002 BMT + 57 Subject: to Robert, from Matt I wish Robert can come back home. I really, really wish that Robert could come back....
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 31, 2002 BMT + 58 Life is good! Today Robert’s platelets stayed the same as yesterday. This means he has to be making his own and he...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 1, 2002 BMT + 59 The change in Robert this last week has been miraculous. Who would have thought just a week or two ago that they...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 2, 2002 BMT + 60 Dan’s update yesterday is hard to top, so I won’t even try. Robert is doing great; he’s been thrilled because his...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 7, 2002 BMT + 66 Robert’s eyes are looking less yellow. He looks quite striking with his dark tan and his baseball hat from Doctor...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 8, 2002 BMT + 67 I was pretty embarrassed yesterday; I requested a consult from dermatology to look at the black line across...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 10, 2002 BMT + 69 Tomorrow will mark 10 weeks at UCSF for Robert (this time). He seems ready to go home. Today he tried to get out...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 11, 2002 BMT + 70 Robert is still in good spirits, but not eating enough. The bone marrow team has decided to go ahead with a liver...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 12, 2002 BMT + 71 Robert had his biopsy at about 10:00 a.m. this morning, just before I received a copy of his counts. With his GGT...