Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 13, 2002 BMT + 72 We haven’t gotten results on the biopsy yet but Dr. Menzer this morning told me he was switching Robert from...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 14, 2002 BMT + 73 Kathleen says feedback was positive when I took credit for Robert’s improvement. She tells me the pressure is on...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 15, 2002 BMT + 74 Robert is sleeping through his Saturday afternoon (he received Benydril before receiving his by-weekly dose of...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: BMT + 75 Today has been quiet; the exciting part of the day is giving Robert his medications. Since there isn't much to talk about, I...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 17, 2002 BMT + 76 Everyone I met in the hallway today said I hear you are going home tomorrow. It sounded so good. Robert was...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 18, 2002 BMT + 77: Homebound! Robert knew something was going on when I pulled the hospital kid's wagon into the room so I could...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 20, 2002 BMT + 79: Homebound! I wish everyone could enjoy life as Robert does and we are so lucky to be able to enjoy his pleasure...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 23, 2002 BMT + 82 Matt had a very big birthday party today. It was hard to leave Robert behind when we left for the park to meet...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: June 24, 2002 BMT + 83 Robert had forgotten how to "share" while he was in the hospital and relearning it is coming very slow. He does...