Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 8, 2002 BMT + 98 My how time flies when you are trying to get someone to eat every minute he is awake. Robert has lost all interest...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 22, 2002 BMT + 113 We had a wonderful day last Friday. Jenny Smith and her aunt and uncle, Liz and Roy had dinner with us and they...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 10, 2002 BMT + 132 It has been hard to write. My portable computer has been in the shop for a few weeks and I needed to take the...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 12, 2002 BMT + 134 It sure is nice to have your own cheering section. It makes life just wonderful. Robert's case manager called...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 11, 2002 BMT + 164 Dear Friends and Family, I know I am very remiss in my updates but Robert is again on his way to UCSF. He...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 14, 2002 BMT + 167 Every time I come up to UCSF for Robert, I figure this should be the last night in the hospital. But then...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 16, 2002 BMT + 169 Robert did get to come home today. He has his feeding tube for twelve hours a day, an anti-biotic running...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 30, 2002 BMT + 183 As many of you are aware, Robert has been in and out of the hospital for the last three weeks, with more...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 19, 2002 Robert’s Update- 6.5 months post transplant I think it is almost a month since I last wrote. I have not heard any...