Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 6 2001 Robert BMT + 18 Today was a celebration day. Robert's white blood cell count went from .1 to .2. It is such a minimal...
Journal Collections
Kathleen’s Journal Entries
Robert’s Road to Recovery Journal August 7 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 7, 2001 Robert BMT + 19 As you know from yesterday's update, Robert has started to produce white blood cells. His counts today...
Robert’s Road to Recovery Journal August 9 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 9, 2001 Robert's Update BMT + 21 Robert had a great day and his parents had an excellent day. Dr. Horn had come by yesterday...
Robert’s Road to Recovery Journal August 10 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 10, 2001 Robert's Update BMT + 22 It is now official; Dr. Horn said Robert might go home next Thursday. Even though she has that...
Robert’s Road to Recovery Journal August 13 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 13, 2001 Robert's Update BMT + 25 Spring Cleaning has started at our house. The windows were cleaned today, tomorrow the walls...
Robert’s Road to Recovery Journal August 16 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 16, 2001 Robert's Update BMT + 28 Well, the original plan was to go home today. Yesterday, they finally did the head and back MRI...
Robert’s Road to Recovery Journal August 17 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 17, 2001 Robert's Update BMT + 29 Robert had a very good day today, and the doctors are now planning on sending him home Tuesday....
Robert’s Road to Recovery Journal August 19 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 19, 2001 Robert's Update BMT + 31 I should start with the bad news, Robert had another fever starting about 7:00 tonight. It rose...
Robert’s Road to Recovery Journal August 20 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 20, 2001 Robert's Update BMT + 32 Everyone that reads this must celebrate! In this process there are so many ups and downs that...