Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal August 6 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 6 2001 Robert BMT + 18 Today was a celebration day. Robert's white blood cell count went from .1 to .2. It is such a minimal...

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Robert’s Road to Recovery Journal August 7 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 7, 2001 Robert BMT + 19 As you know from yesterday's update, Robert has started to produce white blood cells. His counts today...

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Robert’s Road to Recovery Journal August 9 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 9, 2001 Robert's Update BMT + 21 Robert had a great day and his parents had an excellent day. Dr. Horn had come by yesterday...

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Robert’s Road to Recovery Journal August 10 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 10, 2001 Robert's Update BMT + 22 It is now official; Dr. Horn said Robert might go home next Thursday. Even though she has that...

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Robert’s Road to Recovery Journal August 13 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 13, 2001 Robert's Update BMT + 25 Spring Cleaning has started at our house. The windows were cleaned today, tomorrow the walls...

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Robert’s Road to Recovery Journal August 16 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 16, 2001 Robert's Update BMT + 28 Well, the original plan was to go home today. Yesterday, they finally did the head and back MRI...

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Robert’s Road to Recovery Journal August 17 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 17, 2001 Robert's Update BMT + 29 Robert had a very good day today, and the doctors are now planning on sending him home Tuesday....

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Robert’s Road to Recovery Journal August 19 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 19, 2001 Robert's Update BMT + 31 I should start with the bad news, Robert had another fever starting about 7:00 tonight. It rose...

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Robert’s Road to Recovery Journal August 20 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: August 20, 2001 Robert's Update BMT + 32 Everyone that reads this must celebrate! In this process there are so many ups and downs that...

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