Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal September 2 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 2, 2001 Robert's Update BMT + 45 If this were a book I might wait until it was published to read it and then I might read the...

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Robert’s Road to Recovery Journal September 3 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 3, 2001 Robert's Update BMT + 46 Robert's white blood cells and neutraphils were lower today, but still at a safe level for...

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Robert’s Road to Recovery Journal September 4 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 4, 2001 Robert's Update BMT + 47 Robert is really irritated I am writing this update instead of paying attention to Barney....

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Robert’s Road to Recovery Journal September 6 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 6, 2001 Robert's Update BMT + 49 Robert is finally back home. His brothers and sisters came up to see his hospital room, and...

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Robert’s Road to Recovery Journal September 7 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 7, 2001 Robert's Update BMT + 50 There was some very, very good news today. I got the idea from Jenny's Journal to ask Dr....

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Robert’s Road to Recovery Journal September 13 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 13, 2001 Robert's Update BMT + 56 We said we would write when something new happened. We did not expect to let almost a week...

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Robert’s Road to Recovery Journal September 15 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 15, 2001 Robert's Update BMT + 58 Robert is home and feeling frisky. Uncle Dan came over to watch Robert so that both Mark and...

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Robert’s Road to Recovery Journal September 21 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 21, 2001 Robert's Update BMT + 64 I think writing can be a form of therapy. JoJo passed away around 5:30 p.m. today. He spent...

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Robert’s Road to Recovery Journal September 27 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 27, 2001 Robert's Update BMT + 69 Not much to report on Robert right now except he is still very happy to be home with us even...

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