Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 29, 2001 Robert's Update BMT + 72 Robert is doing pretty well. We are waiting on the last engraftment data; Dr. Cowan said the...
Journal Collections
Kathleen’s Journal Entries
Robert’s Road to Recovery Journal October 13 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 13, 2001 Robert's Update BMT + 83 Robert looks like a little imp, with his big black eye brows and dark curly hair growing in. I...
Robert’s Road to Recovery Journal October 20 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 20, 2001 Robert's Update BMT + 90 I am becoming concerned about Robert's counts. We draw blood twice a week and his white blood...
Robert’s Road to Recovery Journal October 22 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 22, 2001 Robert's Update BMT + 92 Dear Friends and Family, I want to know which one of you did all the praying. Isn't life grand...
Robert’s Road to Recovery Journal November 7 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 7, 2001 Robert's Update BMT + 108 Mark is on his way to U.C.S.F with Robert and I am up waiting for him to let me know when...
Robert’s Road to Recovery Journal November 10 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 10, 2001 Robert's Update BMT + 111 Today was not fun. Robert started the day waking up late, 9:00 a.m. I took a look at his...
Robert’s Road to Recovery Journal November 16 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 16, 2001 Robert's Update BMT + 117 Robert came home last night and was just thrilled. In fact, he stayed up until 12:30 a.m....
Robert’s Road to Recovery Journal November 19 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 19, 2001 Robert's Update BMT + 119 Dear Friends and Family, A little set back. We used to say if we wanted to go away, never...
Robert’s Road to Recovery Journal November 22 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 22, 2001 Robert's Update BMT + 122 Dear Friends and Family, Robert did get to come home with Uncle Dan last night, about 11...