Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal September 29 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: September 29, 2001 Robert's Update BMT + 72 Robert is doing pretty well. We are waiting on the last engraftment data; Dr. Cowan said the...

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Robert’s Road to Recovery Journal October 13 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 13, 2001 Robert's Update BMT + 83 Robert looks like a little imp, with his big black eye brows and dark curly hair growing in. I...

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Robert’s Road to Recovery Journal October 20 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 20, 2001 Robert's Update BMT + 90 I am becoming concerned about Robert's counts. We draw blood twice a week and his white blood...

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Robert’s Road to Recovery Journal October 22 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: October 22, 2001 Robert's Update BMT + 92 Dear Friends and Family, I want to know which one of you did all the praying. Isn't life grand...

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Robert’s Road to Recovery Journal November 7 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 7, 2001 Robert's Update BMT + 108 Mark is on his way to U.C.S.F with Robert and I am up waiting for him to let me know when...

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Robert’s Road to Recovery Journal November 10 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 10, 2001 Robert's Update BMT + 111 Today was not fun. Robert started the day waking up late, 9:00 a.m. I took a look at his...

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Robert’s Road to Recovery Journal November 16 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 16, 2001 Robert's Update BMT + 117 Robert came home last night and was just thrilled. In fact, he stayed up until 12:30 a.m....

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Robert’s Road to Recovery Journal November 19 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 19, 2001 Robert's Update BMT + 119 Dear Friends and Family, A little set back. We used to say if we wanted to go away, never...

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Robert’s Road to Recovery Journal November 22 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: November 22, 2001 Robert's Update BMT + 122 Dear Friends and Family, Robert did get to come home with Uncle Dan last night, about 11...

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