Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: December 17, 2001 Robert's Update BMT + 151 Robert's favorite line these days is, "What you doin?" and "What?". He seems to be...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: December 18, 2001 The Stark/King/Olsen Update As many of you are already aware, the above family (S/K/O Family, for future reference)...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: Robert’s Bone Marrow Transplant + almost eight months Recently, I have felt like we were heading into the station and about to exit the...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 14, 2002 Robert’s Bone Marrow Transplant + almost eight months Yesterday was pretty scary to me; Robert's ANC level was 230. For...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 18, 2002 Robert’s Bone Marrow Transplant + almost eight months Friday, Helen Couch called. She is the woman at U.C.S.F who does...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 24, 2002 Well, it sure looks like Robert will be going back into the BMT ward tomorrow and he will start radiation on Tuesday;...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 25, 2002 We checked in today and got Robert settled. They fortunately had gotten a box of new videos donated to the hospital and...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 27, 2002 BMT -5 Robert went through two more rounds of radiation today. Because of his size and his inability to stay still enough...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 28, 2002 BMT-4 Robert finished his TBI or total body irradiation today. He put on quite a show, entertaining everyone at his last...