Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 29, 2002 Robert started ATG today and has not been tolerating it well. His blood pressure shot up to 145/125 even though he was...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: March 31, 2002 BMT – 1 Robert had h-ATG on Friday and because of the seizure he was switched to rabbit ATG. He had rabbit ATG last time...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 2, 2002 BMT-0 or could be + 1 (who knows?) Robert’s new bone marrow from his donor arrived around 6:00 p.m. last night and then it...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 3, 2002 BMT + 1 Robert had a much happier day today. He woke up happy and enjoyed having company today. Monaca, the physical...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 4, 2002 BMT + 2 Today was a quiet day for Robert. He slept very well because Cara was watching over him all through the night. She...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 6, 2002 BMT + 4 Things are getting rougher for Robert. He points to his mouth and tries to tell Mark it hurts. He drools in his...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 7, 2002 BMT + 5 Robert is feeling better today after 24 hours of antibiotics. He still has an intermittent fever, but it can be...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 9, 2002 BMT + 7 Right now it feels like a numbers game; watching Robert's temperature, his blood pressure, his oxygen level, his...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 10, 2002 BMT + 8 Life is good when you still have a mother who can hug you and tell you that everything will be alright; when your...