Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 12, 2002 BMT + 10 Robert has been uncomfortable today. Because Robert has the mentality of a two and half year old and seems to...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 13, 2002 BMT + 11 Mark had some cautiously optimistic data this morning when he received a copy of Robert's counts and discussed...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 14, 2002 BMT + 12 Today was a very up and down day. My cousin, Tammy found another Will Smith she is mailing to us. Robert's...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 15, 2002 BMT + 13 Robert started the anti-fungal medicine, amphatericen, yesterday. The nurses call it the "Shake and Bake"...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 16, 2002 BMT + 14 Today was very rough right from the start. Robert's counts were great but his rash was worse and his bilirubin...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 17, 2002 BMT + 15 Today was another difficult day. Robert had a long night, with fairly high fever for more than 9 hours. Tylenol...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 19, 2002 BMT + 17 It was a very tough day for Robert. He has been cycling through some very high temperatures ( 39.8=103). I...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 20, 2002 BMT + 18 Today was another difficult day. Robert continued to have evidence of liver complications (high biliruben - 5.0,...
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 21, 2002 BMT + 19 The situation for Robert is very serious. The doctors told Mark that Robert's VOD is moderate but if his...