Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal April 22 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 22, 2002 BMT + 20 Robert was more uncomfortable today, and his rash seemed worse. He also had a slight fever in the evening. His...

read more

Robert’s Road to Recovery Journal April 23 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 23, 2002 BMT + 21 The nights are the worst for Robert. He has been having low grade fevers, high respiratory rates, high heart...

read more

Robert’s Road to Recovery Journal April 24 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 24, 2002 BMT + 22 Robert's liver/kidney function numbers trended down and one up. His GGT went from 993 to 696; his AST and ALT...

read more

Robert’s Road to Recovery Journal April 25 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 25, 2002 BMT + 22 Robert's numbers looked good again today. Robert's Bilirubin was slightly down and so was his GGT. He was very...

read more

Robert’s Road to Recovery Journal April 26 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 26, 2002 BMT + 23 Robert had fevers most of the day. This was unusual; most of his fevers have been at night. He felt pretty...

read more

Robert’s Road to Recovery Journal April 27 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 27, 2002 BMT + 25 Robert had fevers most of the day again. He felt a little better during the day. The bilirubin was down slightly...

read more

Robert’s Road to Recovery Journal April 29 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: April 29, 2002 BMT + 27 Robert has kept us very busy in the last 24 hours. He has had severe diarrhea for the last few days, and last...

read more

Robert’s Road to Recovery Journal May 1 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 1, 2002 BMT + 29 Robert’s numbers looked good again today, except that his bilirubin was up to 16.3, a jump from 12.2. Robert’s GGT...

read more

Robert’s Road to Recovery Journal May 2 2002

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: May 2, 2002 BMT + 30 Robert is comfortable and stable in the Pediatric Intensive Care Unit (PICU) today. He had a very serious incident...

read more