The National Organization for Rare Disorders (NORD) is offering financial assistance to US families traveling to the ISMRD 7th International Family and Scientific Conference to support a loved one with a rare disease. This assistance aims to alleviate the financial burden of attending this important event.

What NORD Covers:

• Conference registration fees.
• Partial travel expenses (airfare or mileage reimbursement).
• Partial accommodation costs.
• Travel assistance, including booking support for flights.
• Assistance is available for the entire family attending, not just the individual with the rare disease.

Application Process:

1. Initial Application: Begin by completing the online application through the NORD website: https://applications.rarediseases.org/Home/WebEnroll?pId=177
2. Phone Support: If you require assistance with the online application, please contact NORD at 860-556-2208.
3. Physician Verification: Following your initial application, NORD will send you paperwork for your physician to complete, confirming the diagnosis of the rare disease.
4. Approval and Assistance: Upon receipt and approval of the physician’s verification, NORD will begin coordinating and providing financial assistance for your travel and other covered expenses.

We encourage all eligible families to take advantage of this generous opportunity. Please contact NORD on +1 860-556-2208 with any questions.

ISMRD’s 7th International Glycoproteinoses Conference advisory board is excited to release the Registration and Sponsorship Opportunities via the links below. Please note that sponsorship items will be assigned in a fair and balanced manner, based on the date the online application and payment are received, and the company’s priority points. Popular sponsorship items sell out quickly, so companies are encouraged to submit their applications early.

As a potential sponsor, please use the following links to access more information for ISMRD’s 7th International Glycoproteinoses Conference 2025:

1. Registration

2. Sponsorship Opportunities

Thank you to ISMRD’s International Glycoproteinoses Conference Current Sponsors:

Silver Sponsorship

Thank You to ISMRD’s International Glycoproteinoses Conference Past Sponsors:

Mallinckrodt Pharmaceuticals, EveryLife Foundation, Sanofi Genzyme, Office of Rare Diseses, JCR Pharmaceuticals, Moderna, Chiesi, PTC Therapeutics, Shire, Zymenex, Rock 4 Dakatah, Mercy Medical Airlift, National Institute of Health, Amicus Therapeutics, Washington University in St. Lois School of Medicine, National Institute of Neruological Disorder and Stroke, The Wagner Foundation, The Pernille Foundation, Dr. Charles Vite, Dr. Mark Haskins

Showcase your latest research! The poster submission window is now open for ISMRD’s 7th International Glycoproteinoses Conference.

We are looking for poster abstracts focused on Glycoproteinoses rare disease research. Academics, researchers, industry, government agencies, healthcare professionals, patient organizations, and other interested parties, such as students who have conducted rare disease or orphan product research studies or public health projects relevant in these rare diseases are invited to submit an abstract for inclusion in the poster hall.

This is a great opportunity to share your research findings! Before submitting your poster abstract, check out ISMRD’s Abstract Guidelines.

The deadline to submit your poster abstract is Wednesday, April 30, 2025

To submit a poster abstract, please visit the Abstract Submission Form.