Chronicling the saga of a young adult woman’s fight to stem the advances of a very rare genetic disorder, alpha mannosidosis, via bone marrow transplant. If you wish to know more about transplants for any storage disease, please visit our BMT Information page.
Please see Robert’s Road to Recovery for a perspective on an ongoing BMT for an adolescent child with Alpha Mannosidosis.
My Donor
Dedicated to Todd Bobeda, Jenny’s donor.
The International Society for Mannosidosis & Related Diseases offers “Jenny’s Journal” as a public service in hopes of raising awareness for alpha mannosidosis and bone marrow transplants. We are grateful to Jenny’s family for sharing her story on this website. However, we wish to emphasize that any opinions stated within these pages do not necessarily reflect the views of The International Society for Mannosidosis & Related Diseases, nor should they be construed as being editorially supported by our organization.
Last updated: January 30, 2002