Jenny’s mom, Dianne, has kept family and friends apprised of Jenny’s progress with her Bone Marrow Transplant from the initial decision to move forward to the tense days and weeks following the procedure. These “updates” have here-to-now been shared with members of a private Mailing List. The Smiths have decided to share Jenny’s progress with the world, in hopes of helping others who may face similar difficult decisions.
To follow Jenny’s story from finding a donor, to transplantation and to recovery select a journal entry below. Each entry is listed by date, so viewing from the beginning will enable you to follow chronologically.
Contents:
- may 19: BMT Scheduled
- june 10: Preparing & Waiting
- june 16: Tomorrow is the Day
- june 18: A Great Day!
- june 28: Progressing Well
- july 2: Exceeding Expectations
- july 8: We’re Home!
- july 15: Disbelief!
- august 3: Rollercoaster Ride
- august 9: Bad News/Good News
- august 21: Progress is Slow
- september 10: One Step Up, Two Steps Back
- september 16: 3rd Time the Charm?
- october 4: A Turn for the Better!
- november 6: So Many Things
- november 29: A Trying Month!
Contents:
february 10: Finally..the answer!
february 24: 100% Engraftment!
April 25: We’ve Been Totally Blind-sided
june 5: Nothing in Our Lives Could Have Prepared Us for This!
july 6: Transplant is Back on Track!
september 6: CMV Virus in Both Retinas!
september 27: The Best is Yet to Come!
october 19: More Progress with a Small Setback
november 20: Jenny continues to work so hard!
Contents:
january 7: An Unforgettable Day!
february 14: Finally … a break …MAYBE!?
march 17: No change and no answers
april 5: An Answer — it is treatable and reversible!
may 29: A Tentative Step
august 7: Progress In Leaps & Bounds!
2002
january 12: Our Hearts are filled with HOPE!
january 30: new post-BMT photo gallery!
april 17: Jenny Continues to Improve!
july 30: Great News for the Lysosomal Disease World!