The Smith family, in their desire to help humanize alpha mannosidosis (and out of understandable pride for their daughter), have consented to this pictorial homage to Jenny. We hope you enjoy it and our thanks to Jenny for her courage and her beauty!
This photographic essay is available in two “albums:” one of her and her family from toddler to pre-bmt and another of her saga into and beyond her procedure. Click an album to begin the journey.
(updated August 18, 2002)
Steroid Free at Last!