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Select Page
  • Glycoprotein Diseases
    • Alpha-Mannosidosis
    • Aspartylglucosaminuria
    • Beta-Mannosidosis
    • Fucosidosis
    • Galactosialidosis
    • Mucolipidosis II alpha/beta
    • Mucolipidosis III Gamma
    • Schindler Disease
    • Sialidosis
  • About
    • Board of Directors
    • Professional Advisory Board
    • Annual Reports
  • Resources
    • U.S. Doctor Database
    • Family Stories
    • Useful Links
    • Video Library
  • News and Events
    • Research and Grants
    • Events
    • Newsletters
  • Contact
  • Donate


Recovery and Treatment Journals

Robert’s Road to Recovery Chart

Robert’s Road to Recovery

Home Medicine Chart

Week of Sept. 10th

Sept10_homeMed

Week of Sept. 17th

Sept17_homeMed

  • Robert’s Road to Recovery Home
  • Prologue
  • Back to the Beginning
  • Suspicions & Diagnosis
  • Action plan & donor search
  • Robert’s surgeries
  • The First Transplant
  • Medical notes BMT #1
  • The Second Transplant
  • Email Kathleen
  • Robert’s Road to Recovery Home
  • Prologue
  • Back to the Beginning
  • Suspicions & Diagnosis
  • Action plan & donor search
  • Robert’s surgeries
  • The First Transplant
  • Medical notes BMT #1
  • The Second Transplant
  • Email Kathleen
← Robert's Road to Recovery graph Robert's Road to Recovery surgeries →

Family Stories

  • Family Stories Page

Family Journals of Treatment & Recovery

  • Alexander's Hope
  • Damien and Jesse-Rose
  • Daniel and Alexander's Journey to Diagnosis
  • Ivan the Great
  • Jenny's Journal
  • Robert's Road to Recovery
  • Trajano Cerna's Story

Stories Organized by Disease

  • Alpha-Mannosidosis 
  • Aspartylglucosaminuria 
  • Beta-Mannosidosis
  • Fucosidosis 
  • Galactosialidosis 
  • Mucolipidosis II alpha/beta 
  • Mucolipidosis III alpha/beta 
  • Sialidosis

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  • Glycoprotein Diseases
  • About
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Mail: P.O. Box 683, Turnersville, NJ 08012, USA

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