Recovery and Treatment Journals

Robert’s Road to Recovery Journal April 7 2002

Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: April 7, 2002

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BMT + 5

Robert is feeling better today after 24 hours of antibiotics. He still has an intermittent fever, but it can be reduced with Tylenol. Today, Robert felt well enough to get out of bed for a while and play with his toys. He had slept most of Saturday, but was up most of the day today. Kathleen came up to the hospital this morning after sending the other four children off to their grandparents, and we got to spend a little time together.

Robert’s mouth is still sore, but there is no blood in his mouth, which is a good sign. We’re hoping that it does not get much worse, but we’ll see. The doctors are happy with Robert’s progress so far, and Robert was happy to see both of his parents today for a while.

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