Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: August 12, 2002

BMT + 134

It sure is nice to have your own cheering section. It makes life just wonderful. Robert’s case manager called this morning and said don’t worry about the insurance statement, that it was internal information for UCSF and had no effect on us. So you could say we are $400,000 richer today than we were Saturday or you could say we get to keep our house.

Tomorrow is the last day of antibiotic IV (this is when you all cheer). Robert was so excited; everyone came home today and we were all together. By far, he is still the loudest.

I don’t know if I mentioned before that Robert seems to be walking a little better, catching a ball better and singing better. He does the howling scene in Oliver and Co. pretty well.

We are so happy to be all together that we are going to celebrate by all going to bed early.

Counts