Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: August 13, 2001

Robert’s Update BMT + 25

Spring Cleaning has started at our house. The windows were cleaned today, tomorrow the walls and carpets. The big day is still Thursday.

Robert has sure had the watery diarrhea. I thought he was definitely sick because he turned down a cup of diet coke. By the fourth time I asked he began to drink it. He is now having the equivalent of Betty Crocker gushers. He is watching Winnie the Pooh while eating little Winnie the Pooh figurines.

His temperature has been slightly elevated at 37.6 and they have been giving him more medication to keep the blood pressure down.

Robert’s counts look good. His ANC is 1006 vs.460 yesterday and his white blood count has risen to 2.0 vs.1.2 yesterday. His platelets are up at 55 vs. 45 yesterday.

Today they took the blood for the donor vs. host study which should come back next week.

Robert, Michelle and Sophia left today. We will miss having them around the house.