Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: August 31, 2001

Robert’s Update BMT + 43

Yesterday was an uneventful day. I was going to say “a quiet day”, but it is not very quiet when Robert’s in a good mood. Robert was in very good spirits, walking around his bed, and playing a lot. The good news is his white counts were up another 50%, and his neutraphils are up into the normal range. We will get testing done next week (as mentioned in yesterday’s update) that will hopefully give us some idea of how the graft is progressing. We did have some other good news: the results of testing Matthew (Robert’s twin) are back, and he does not have alpha-mannosidosis.

Robert’s neighbor Jo Jo is still stable and making slow progress in kidney-function improvement. His doctors are amazed but hopeful that Jo Jo will continue to do well.

Thank you, Mark