Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: September 11, 2002

BMT + 164

Dear Friends and Family,

I know I am very remiss in my updates but Robert is again on his way to UCSF. He has been loosing weight and he needs to get in more calories in order to see if he puts on weight. If he doesn’t put on weight we have to worry about graft vs. host.
He was at UCSF last weekend and had a NG tube put in in order to feed him 1000 calories a day. His potassium levels have been high and he is running a very low grade fever so that is why we are on our way back.

I will ask Mark to write another update soon. Thanks for continuing to prayer for Robert.

Kathleen