Robert’s Road to Recovery Journal

Presented by the International Society for Mannosidosis & Related Diseases.

Kathleen’s Diary: September 15, 2001

Robert’s Update BMT + 58

Robert is home and feeling frisky. Uncle Dan came over to watch Robert so that both Mark and I could go to Matt’s first soccer game (his team won). Robert held Uncle Dan’s hand in order to walk around a little bit. Later today he took his first few steps un-aided (thank you Scott for excellent suggestions). I now think I will be able to gage when Robert’s counts are low.

Things are pretty bad for JoJo. I am going to head up to see his mother, Ping and see if I can be some comfort to her. Parris’ parents, Brenda and Brian have been going almost twice a day. I think they have been a real comfort to Ping.