Recovery and Treatment Journals

Robert’s Road to Recovery: the First Transplant

Robert’s Road to Recovery

The First TransplantHeading

Kathleen’s Personal Diary

Robert’s mother, Kathleen, is maintaining diaries of her son’s BMT for Alpha Mannosidosis. This section covers the details behind Robert’s first transplant, which lost engraftment in the late winter of 2002. Shortly thereafter his family made the decision to proceed with a second transplant.

2001
July: 9 | 10-12 | 14 | 15 | 16-17 | 18 | 19 | 23 | 27

August: 6 | 7 | 9  | 10 | 13 | 16 | 17 | 19 | 20 | 21 | 23 | 24 | 25 | 26 | 27 | 30 | 31 |

September: 1 | 2 | 3 | 4 | 6 | 7 | 13 | 15 | 21 | 27 | 29

October: 13 | 20 | 22

November: 7 | 10 | 16 | 19 | 22

December: 17 | 18

2002
March: 10 | 14 | 18 >> a second BMT!

Learn more about alpha-mannosidosis!